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Lately I feel this rotating bubble of energy inside. Filled with possibility. I want to say I can to everything instead of I can’t. I can’t implies weakness; my body maybe weak but my aspiration to become a successful author is strong. It’s ironic that at this point in time my balance, walking, neck pain, headache, fibromyaligia strikes so haphazardly that embarking on anything is a risk…but I don’t care. I’m taking my chances…and a cocktail of painkillers. I know the side effects of all my different tablets but I’m fifty two this year, ridiculously healthy other than my spine’s crumbling like Flake, so I need to embrace life now. God. Yes. Take the drugs. I need to live my best life now. Just typing these words evokes a thrill…a flicker of a future beyond my four walls.
Like last Saturday was Book Club. The consensus was, I should stay put the day before, the day of, the day after. I couldn’t. This restlessness that has a hold of me had me heading to the local tanning shop. For the first time in thirty years the buzz of bed three flashing on, heating my skin, warming my bones, browning the pale skin of my wasted muscles was medicinal. I can’t describe how peaceful and content I felt for five minutes. My son bought me a course and I’ve been three times now; skin cancer is the least of my worries. For a while I was in this vortex of negativity; the sunbed is a form of self care. Something I need a lot more of. I’m off to the House of Lords on Tuesday, to a reception for Myelopathy.org the charity supporting my condition. So that day I’m getting my nails done, it’s a luxury, but essential to my well being. It’s going to be a tough day travelling to Westminster, standing around, turning my head to talk to people, getting home but I need to be with others with my condition, I’ve not met anyone else like me todate. I’m excited to meet those that had the determination to create first the facebook group myelopathy.support then the charity. It goes without saying I hope there is champagne and canapies.
Book club was great fun. It’s very sociable; nibbles, dinner, alcohol, pudding, Jeffrey Archer. I love it. I’ve made new friends, there’s catching up with old buddies, everyone is so considerate of my condition, the book chit chat is topical and indepth. The charity https://myelopathy.org/ is supported by the group; I deposited £18 yesterday.
Once Random Attachment takes off a little more I’ll be putting a percentage toward Myelopathy.org. Once I cover the printing cost of paperbacks, paid Amazon their share, there is hardly anything to put toward promotions. I’m trying giveaways in return for a review should the person enjoy the book, Instragram promotions, Random Attachment merchandise for photos. Published authors tell you it’s near impossible to self promote, you need professionals and I agree but I’m not in that financial position. It’s fun though…coming up with mad ideas, arranging random items for a photo. I think at the beginning I exhausted myself, I’ve taken a step back. That’s why I haven’t blogged or vlogged for a while. I have to avoid dips in my energy level as negativity will creep in. Inside all of us is a pocket of self-doubt, helplessness, anxiety, anger…having a long term illness with chronic pain my pocket balloons with negative emotion if I’m tired or rundown so I must take a steady pace. So, sprawled on my soft, pink sofa I binged watched The Crown. It never appealed to me on TV but during Easter Kitty and I came upon it after procrastinating over Netflix and Now programmes. I’m so happy we did; it was addictive whilst being relaxing and a change from our American teen dramas.
Anyways the Sunday after Book Club I had a taste for more adventure. I can’t just go anywhere. The longer I’m on London transport the more my neck will jerk. The further I walk to a location the tireder my limbs will get. Together this leads to pain, immobility and my enjoying the event less. So we trained it to nearby Harrow, to an Italian coffee shop that’s more a cafe. It was highly rated on Trip Advisor and rightly so because the atmosphere was vibrant, the choice of food was varied from a full English to lasagna to cake. Kitty had a vegan breaky and I had the most delicious cheesecake. The average person probably doesn’t give a passing thought to going for coffee. That’s how different my life is…my flare ups are not fibromyaligia or myelopathy…these conditions are my norm, my everyday life…my flare ups reduce my symptoms: a burst of energy, remission of pain, a steadiness on my feet. Once, I too ran around the city from coffee shop to wine bar to brasserie. Popping off to Oxford Street, going to the theatre, clubbing in the West End. I count myself lucky I experienced that. I’m glad I was unaware of my congenital defects. That I’ve paraglided, abseiled, danced the eighties away, birthed four beautiful babies who make every day brighter for me.
My ‘hold onto the seat of your pants’ life reduced to a ‘slippers in front of the fire life’ and the carer became the cared for. I felt like I was lost in space but actually I was an astronaunt in hypersleep because I woke up with an idea that I could be an author…that I had another life yet to live. So it’s a great high when I get positive feedback. https://www.instagram.com/p/BwnQQeTnPtp/?utm_source=ig_share_sheet&igshid=6l7axdn0aghk&fbclid=IwAR2D_rM4mGI4MlOEK0jsFcn5FVJY_2nGbhfEjnhFOBRjNu3WvP05NgUpN50
My favourite book of 2019 so far is A Curse So Dark and Cruel, a contemporary retelling of Beauty and the Beast. I knew it would be hard to follow and it was tough reading my book club book Kane and Abel. I read it in my teens and couldn’t get enough of Jeffrey Archer material until his court case. Back then, before social media, authors were as enigmatic as popstars, so it wasn’t often you heard their dirty laundry. Also I found him a bit pompos and up himself so rereading Kane and Abel, although it’s a simple rich man, poor man tale, was pants. However I did come across some jems recently: the endearing Eleanor Oliphant Is Completely Fine who like Mia from RA has serious mother issues and two YA sure things by the fantastically named Rainbow Rowell: Fan Girl and Eleanor and Park.
Music wise my song of the week is Lil Nas’s Old Town Road; both versions, his and the collaboration with Billy Rae Cyrus. Where do I get this bare chilled music from? Spotify and my son Tommy who is constantly dropping me links of new music. I don’t like all rap or all Emo, it’s got to have a distinctive voice and a killer corous.
Not only have I not blogged in ages I haven’t vlogged so I’m hitting it hard today.
Realistically I know I’m not going to be an overnight writing sensation but I don’t need a miracle I need for readers who like RA, to star it on Amazon, mention it on Instagram and copy by copy my identity as a writer will be validated. So if you love YA and you’re considering your next purchase take a chance on Random Attachment. It’s a simple romantic thriller, nothing highbrow, nothing fantastical or magical but I’m proud of it. I think it holds its own among other YA thrillers. It would be lovely if you subscribed to my channel or followed me on instagram…slowly I’m building up my numbers. Even if you don’t do any of this thank you for reading my post.